Sunday, October 17, 2010

Medical professionals who are anything but.




We have all met them. Or worked with them. Or have heard stories about them. Bad medical professionals. Be it nurses, MDs, dentists, physical therapists. You name it. They are out there. Everywhere.

And just because someone has MD after their name, or RN, it simply does not make them a compassionate, caring person. No. Not by a long shot.

Nor does it mean they are necessarily competent. No matter how impressive their credentials are.

I could tell you stories, scary stories that would make you sad. And afraid. But I won't.

I would have to say that most medical professionals are good people. They know their limits and ask for help when necessary. But there are a few out there with an ego as big as Sputnik, and those are the ones that give all the rest of us a black eye.

Nurses know what I am talking about. The arrogant resident, for example, who thinks he knows it all. But he is merely book smart with a fancy degree from a Ivy league school who could not cut his own toenails well, let alone know what to do for a patient in crisis. But he refuses to listen to an RN because, well, we are just beneath him. We could not possibly know anything. And he is dangerous. 007's we call them. Licensed to kill.

Or the RN who gets the best accolades from management because she never calls in sick and works extra shifts and always charts perfectly. Unfortunately, she is awful with any practical patient care and actually puts patients in harm's way. But you cannot say anything, no one is listening. So you just clean up after her as much as you can and hope for the best.

It is maddening. It is what stresses out nurses and MDs and others more than anything else. I always say that it is not the job I hate at times, just the people I am forced to work with that make the job hard.

That is not to say I think myself perfect or that I have never made a mistake. I have. But I try to learn from any mistake I make. I also ask for help when needed. And I always, always, put the patent's needs first.

And that is what you should look for when you are looking at care providers. Putting your needs first. Treating you as a person. Not a diagnosis, not a 4:00pm appointment, not a simple home visit.

They should greet you warmly and look at you. In the eyes. They should listen to you without interrupting or putting words into your mouth. They should explain things thoroughly and not look at their watch every time you ask another question. That is simply rude.

Most people know when something seems not quite right. They realize their concerns are simply being dismissed. They may have a gut feeling that someone is doing something wrong. But most are too intimidated to say anything.

But I will tell you this; be the squeaky wheel. Complain. Put complaints in writing. And repeat as necessary.

The one thing that I can say for sure after being a nurse for 30 years is this; medical professionals do not police their own. We see it all. We know who is bad. We have all witnessed things that we have found to be quite incredulous. But many of us have not said a word. Or we have said something, only to be shot down. They kill the messenger. See if we do that again. It is frustrating, but true.

So, beware. Don't assume that because you are going to a well respected institution for care that everyone there is top drawer. They aren't. Ask around. Get referrals from friends or people with the same medical issues. Go online and search.

I know people who ask for more information about a veterinarian for their dog or a hairdresser for their hair. And I have seen people change their hairdresser after a bad cut, but not too many who will change their MD after a bad diagnosis. It is crazy. It really is.

There are many good, hardworking, excellent medical people out there. Start with the MD and the hospital of course. You cannot always choose your nurse, but you can unchoose her by stating your concerns. Trust your gut. Follow your own thinking.

It could save your life.


All men make mistakes, but only wise men learn from their mistakes.
~~~Winston Churchill

Guard against the prestige of great names; see that your judgments are your own; and do not shrink from disagreement; no trusting without testing.
~~~John Emerich Edward Dalberg Acton

You gotta know when to hold 'em, know when to fold 'em, know when to walk away, know when to run
~~~Kenny Rogers

Monday, October 11, 2010

Deciding to be happy.



I was driving to a patient's home the other day and was behind a car with a bumper sticker that said, "Life sucks, be happy anyway." Truer words have never been spoken, or written.

Life indeed can and does suck. You do not have to be a hospice nurse to understand that. I see a lot of misery. I see a lot pf pain. But I also see something else; happiness despite all of it.

Anti-depressants are the number one prescribed medication in the world. I am sure that self-medicating with alcohol or street drugs trump those numbers 2:1. And why shouldn't people be unhappy. After all, life is hard. People disappoint us, money is tight, people get sick, the news is always bad, work is awful, things never seem to live up to the hype. Some days it seems that we need to just stay in bed with the covers over our heads and hide from the world.

But no one said life would be easy. No one said that we have a right to happiness. So, we should just grab happiness anywhere we find it. We can and must choose to be happy.

I was at the home of an 8 year old patient the other day. It is a sad scene. Here is a beautiful 8 year old with an inoperable brain tumor that will kill her in a few short months. It came on suddenly, and will kill her suddenly. She is still attending school. She has all of her hair. She does not look sick at all.

I look at her young mom. She is devastated. So is the dad. But in that house also lives a 12 year old sister. One with a full life ahead of her. So, do they succumb to doom and gloom? No. They grab any moment of happiness and go with it despite the pain they are feeling.

They choose to be happy.

Happiness is not something that we can feel all the time. But when we feel it, we should immerse ourselves in it. Really feel it. Ask yourself, when was the last time you felt pure happiness?

Many of us do not allow ourselves to be happy. Many wallow in misery and look for others to share their misery with. They are the Debbie and Donald Downers, and they are everywhere. They are hard to avoid. And they usually find a reason to be unhappy about any circumstance. I try to avoid them whenever possible.

Abraham Lincoln once famously said, "Most folks are about as happy as they make up their minds to be." And he was surely right about that. But he also said something better, that is not often quoted. He said, "I want it said of me by those who knew me best, that I always plucked a thistle and planted a flower where I thought a flower would grow."

So, look at happy thoughts as a way of planting a few flowers in a yard full of weeds. Sometimes that is the best we can do. Life will always be hard. Bad things do indeed happen. Misery abounds.

But happiness is there, too. We just have to look for it and embrace it when ever we can.


My advice to you is not to inquire why or whither, but just enjoy your ice cream while it's on your plate. ~Thornton Wilder

The best vitamin to be a happy person is B1. ~Author Unknown

Jumping for joy is good exercise. ~Author Unknown

Happiness always looks small while you hold it in your hands, but let it go, and you learn at once how big and precious it is. ~Maxim Gorky

Let us be grateful to people who make us happy, they are the charming gardeners who make our souls blossom. ~Marcel Proust

Monday, September 27, 2010

When the patient is a child.



I can think of nothing worse than a child on hospice care. The family sitting there, day in and day out, hope gone. Feeling horrible because they cannot kiss it and make it all better. Sitting there feeling angry and sad, feeling like they cannot cope another day, another hour, another minute. Just pure agony.

We don't get too many referrals for pediatric hospice care. Most parents are reluctant to even think about it and fight to the last breath, many children dying in the hospital. I cannot blame them. I would most likely do the same.

But some MDs want the patient to be able to be managed at home. To die at home. To have their last days in a comfortable place. A place that feels safe to them.

And the parents who chose this option are so brave. So very, very brave.

I remember my first pediatric hospice patient. His name was Brian. He was 12. He was the bravest kid I had ever met. I have trouble even thinking about him, let alone writing about him. He remains in my heart always.

Kids have a way of doing that. Being special by just being.

Many kids who are not sick are very special as well. Actually, all kids are special. They just don't get to hear it as often. Many healthy siblings of sick kids are often jealous of all the attention their brother or sister are getting. They feel left out, isolated. They cannot talk about these feelings because it feels so wrong. They think, how can someone be jealous of a loved one who is sick? Something must be wrong with me to feel that way. But nothing is wrong with them. It is completely normal. We see it often. Sometimes in adults as well.

When I go to see a sick child, I also try to visit with the siblings. I bring them gifts. I give them small tasks so that they feel they are helping me with the care of their brother or sister. They want to help and feel a part of it all. As scared as they are, and they are, it helps them to cope. It makes them feel special, too. And they are special. And very brave.

I look at my own daughter. She is very healthy. I am very blessed. But I tell her all the time how special she is. Because things can change in a moment's notice.

People worry about spoiling their children. They worry that if they give them too much they will expect more and never be satisfied. But I say bunk to all of that. Make a wish wishes should not be granted only for the very ill or dying. They should be granted for the living as well.

Many people turn away or refuse to think about the unthinkable. But it happens to all types of families every single day. It humbles me to meet these wonderful families, the ones that have been through so much and still are able to laugh and smile and just simple carry on.

If they have one message it is this; love your child. Love them as much as you can and be grateful for them in your lives, even when they make you crazy. Indulge their whims. Do something unexpected for them on occasion. Hug them more. Tell them how much you love them.

And then tell them again and again and again and again.


While we try to teach our children all about life, our children teach us what life is all about.
~~~Anonymous


Death leaves a heartache no one can heal, love leaves a memory no one can steal. ~~~From a headstone in Ireland

Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night. I miss you like hell. ~~~Edna St Vincent Millay

Wednesday, September 15, 2010

Let your kids play----- P.S. We are all kids at heart.



When was the last time you played? I mean, just really stopped what you were doing and took the time to play?

And when was the last time your kids played freely and joyfully?

Many kids do not even know how to play anymore. They are so used to being structured, that when they do find some free time, they are not sure what to do.

I feel as though sometimes we are pushing them to be something. But I am not sure quite what. I also feel that we push ourselves to be something. And again, I am not sure to what end.

We all want our kids to be successful; of course we do. But a life bereft of fun and games and pleasure is just not a great life.

We think we need things. Lots of things. But things provide only short term joy. However, we still try to get those things, and most of the time we work extra hard and are extra stressed to achieve just that. And what do we end up with? I am not sure I have the answer, but if I look around, I do not see people dancing in the streets full of glee over what they were able to get. I see stressed out folks who like to drink or take a pill to make themselves feel happier. Trying to forget about that stressful day. You know, the one that they have to live day in and day out so that they and their children can have more.

But more what?

I also see a lot of kids. I see them at my daughter's school, I see them when I substitute as a school nurse, I see them when I work as a camp nurse. And what I see frightens me. I see a lot of stressed out kids. If I could send home a prescription, that prescription would say, play more.

And that starts at home. Allow yourself to allow your kids to play. To goof off occasionally. To sit in their PJ's all day on a Saturday watching TV or playing the Wii or reading or sleeping or dreaming or coloring. Have a non-structured day where they can eat what they want and be what they want. It may surprise you that they will love this. They will love this a lot.

And occasionally join them. And not because it is a vacation or a holiday, but for no reason at all. Have a "just living day." Have it on a Thursday or a Monday. Surprise yourself with this gift.

We are fed a lot of stuff these days. That we have to push, push, push; and then we have to push some more. That it is a competitive world and we have got to get going if we are to ever achieve and keep up. I hear it all of the time. I have been caught up in it myself. However, it is simply a lie. And it leads to bad days, not good ones.

But a good day, a really good day, just is. And we do not have enough of them. Our kids do not have enough of them. We are a nation bereft of joy.

So, tonight, let you kids have some fun. Let them play. Yes, even on a Wednesday. Have some fun with them. Have a day when you just eat junk food or tell funny stories or act silly. Don't do errands or laundry or chores. Just be.

I am telling you, play is the best thing for what ails you. It will make us happier people. And after a day like today, I will tell you, it is the most important thing we can ever do.


“You can discover more about a person in an hour of play than in a year of conversation.”
~~~Plato


“I still get wildly enthusiastic about little things... I play with leaves. I skip down the street and run against the wind.”
~~~Leo F. Buscaglia


"The prime purpose of being four is to enjoy being four - of secondary importance is to prepare for being five."
~Jim Trelease


It is easier to build strong children than to repair broken men.
~Frederick Douglass


"Children find everything in nothing; men find nothing in everything."
~Giacomo Leopardi

Sunday, September 12, 2010

Filling up time.




"I don't have any time today."

"I will get to it when I have more time."

"I always thought there would be more time."

I hear a lot of talk about time. Not just when I work with folks that have truly run out of time, but everyday folks in my everyday life. It seems to me that no one feels that they really have enough. We are a nation bereft of time.

I know that we certainly have a lot more time saving gadgets now. More than our mother, father, grandparents and great-grandparents ever had. But it seems as though even with these things we run faster than ever and still never have any extra time to spare.

So what gives?

I read a quote yesterday that stated this:

"People talk about the reality of their life as if it is important. And we want you to understand, it's only the temporary indicator. If your gas gauge is on empty, do you go to the gas station and look at your gas gauge in horror? "How did this happen? Why, why, why did this happen to me?" Do you lay your head on the steering wheel and just sob? "Oh, look what it's come to. I'm finished. I've lived all of this life, and look where I am." Or do you just fill up?"
- Esther Abraham-Hicks

I liked this quote, because most of us feel depleted much of the time. We feel we waste our time on meaningless nonsense. We feel that time is slipping by fast and that we have no control. We feel our life is too busy, but still so empty in so many ways. We feel overwhelmed. Rushed. Exhausted.

But do we ever stop and think about time? Not how much we do or don't have left, because we will never know that, but how we actually spend the time we do have now.

I hear people say things like, "that is a waste of time." or "God, I wasted the whole day and got nothing done." Is it really a waste if you are enjoying yourself? And what is time for anyway? I am sure it is not there to simply use up on meaningless tasks, is it? I hope not. But I don't know for sure.

One thing I do know for sure, however, is that time truly does end. And I can share with you a bit about the end of time. I am familiar with that as I work frequently with the few that are actually there. Time is over. The cancer has spread. They can no longer get out of bed. They await death.

And what do they think about? They think about life. Their life. The time they spent living. Some curse that time. They may have spent way too much of it at a job they hated. They regret not spending more time with family and friends. They regret not seeing Europe. They regret not spending more time on the garden. They wish they had gone to the beach more. They regretted not wasting more time on things that brought them joy.

A patient recently asked me this, "How much time do you spend on joy? You see so much death, you must not want to waste a single day on things that do not bring you joy."

I thought about this. I do spend a lot of time on things that do not bring me joy. Like doing laundry or dishes, or grocery shopping. But those are the everyday tasks that must be done, and I know she wasn't talking about that.

What she was alluding to was this, do we take the time to stop and do things that bring us joy, that fill us up in a meaningful way. Do we make the time to go to that concert we read about, to go to the beach on a beautiful day, to go outside and ride bikes with our kids, to take that art class. Do we stop when we see something that piques our interest, or do we drive by hoping to get back when we have more time?

Or are we using our time to do the things we think we should be doing even though we dread them. Things like spending time with people we don't particularly like, or exercising because we worry about being too fat, or cleaning our homes and pulling weeds and fussing over things that really have no meaning what so ever but that we feel we must do for some odd reason. The fact is we waste a lot of time doing things that do not add value or joy to our lives. And for what gain?

The people I meet at the end of life are not always sad. Some have lived very long and fulfilled lives. They talk to me about their garden, how they went to the beach each summer, how they loved to paint. These people are not all retirees or empty nesters. Yesterday, I admitted a beautiful lady who was only 43. But she talked about her passions and she is still fulfilling those passions, even though she knows that death is a certainty.

"I am not giving up on my life. I will continue to do with it what I want and can until the very last breath is taken from me. And it will have to be taken from me. I choose to fill my life with what I want. I do not choose to leave this life empty."

And so there it is. We can fill our own lives. We can. We just have to choose to take the time to do it. Even as time runs out.

Time goes, you say? Ah no!
Alas, Time stays, we go.
~Henry Austin Dobson


Time is the coin of your life. It is the only coin you have, and only you can determine how it will be spent. Be careful lest you let other people spend it for you. ~Carl Sandburg

Time is a great teacher, but unfortunately it kills all its pupils. ~Louis Hector Berlioz

Wednesday, September 1, 2010

Do good intentions count? Do actions really speak louder than words?



"I really meant to call."

I was meaning to call, but got so busy."

I wanted to stop by, really, I did. But my kids are sick and I thought I would make her sick."

"I didn't know what to say."

These are all excuses I hear from well-meaning friends and relatives who call us to get information about a patient's medical status. I have probably used the same excuses myself.

We all get busy. We all mean to call or to write or to stop by or to buy that card. Many times we have very good intentions, we just don't always follow-up on them. And then time gets in the way and moves us too far forward and we think it is too late to go back now and call or write or whatever.

But it isn't. It is really never too late.

"I haven't heard from her in years," said a patient recently when I told her about a phone call we received from an old friend. "Why is she calling now I wonder?"

We didn't wonder. This was a woman who was well liked by many and we had received many calls. But we are not allowed to give any information to non-family members, so we always refer the questions to the patient or their family members or caregiver.

Her friend had said she knew about the patent's illness from others. They had been best friends in high school, but had lost touch since graduating some 40 odd years ago. They often kept in touch only by the occasional reunion or Christmas card.

"But I never forgot her," her friend said to me. "Life has a way of getting in the way of things that matter to us, keeping us apart. But I have loved her since the 9th grade. She was part of me. Will always be part of me. I never told her that. It seemed like my life going forward with my husband, my kids and my career became me. And that is true to some extent. But that alone did not shape me. You never forget the ones that helped to shape your life. And when they are going to be gone forever, it leaves a huge whole. Bigger than I ever could have imagined. I should have called or visited. I should have written a note. Is it too late now?"

The patient was on home hospice care, pretty much bed-ridden at this point in time. But she was still alert, still taking visitors, still answering the phone. Still alive.

"It is never too late for the living," I told the friend.

"But what if she is mad at me for being quiet all of this time. I really had good intentions. I did. Should I tell her that? Do good intentions count?"

I said I wasn't sure. Perhaps they could count if they are known. But once someone is gone, good intentions provide little comfort.

So she called. They lived 400 miles apart, so a face to face visit was probably not going to happen, but they talked each day for a few minutes and exchanged cards and pictures and their lives met up again.

"I often wondered about Jane," my patient said, her eyes smiling as she talked about her. "I could have called her too, you know. It is not just her fault. She told me about all of her intentions. I told her about all of mine. I am not sure what kept us from doing the things we wanted to do, but that is just water under the bridge now. Swept away. Her good intentions were voiced to me and mine to her and that is good enough. I never really paused enough to reflect on how much the people in my past younger life meant to me. We focus so much on the current, but the past is part of us as well. She will always be a part of me and I of her. Isn't that amazing. Isn't life a grand journey."

This patient died recently, but it made me stop to think about all the good intentions I have had over the years that I never got around to sharing. And I wondered if it was too late as well. But Clara, my patient, taught me something. That good intentions really do count.

That words can be just as powerful as actions.

As long as they are spoken and can be heard and shared.


In the End, we will remember not the words of our enemies, but the silence of our friends.
~~Martin Luther King, Jr

Friday, August 27, 2010

Don't lose yourself to the details of life.



"A single event can awaken within us a stranger totally unknown to us. To live is to be slowly born."
~~Antoine de Saint Exupery

Remember when we were kids? We thought our parents were so boring. They were always doing laundry, going grocery shopping, cleaning, going to work day in and day out. They came home, watched the news, maybe had a cocktail, cooked the dinner, then went to bed. Maybe they read for a while. And of course they nagged us all of the time. To get things done. Things that were meaningless to us.

Remember how we thought we would never be like that? That we would be more interesting, freer to express who we were? It all seemed so simple then.

But then we grew up. The details of life began to consume us. We wanted more so we worked harder. We acquired more. We moved to bigger houses with more stuff. We had kids and became involved in parenting 101, almost at a fevered pitch. We joined the TPA. We joined local community groups. We exercised. We did laundry. We grocery shopped and bought organic.

We make dinner. We clean up dishes. We nag our kids to do their homework, clean their rooms. We shuttle them to activities that we hope will enrich their lives and make them happy. We go to bed exhausted. And then we make our to-do lists for the next round of responsibilities that will need to be done tomorrow, and the next day and the next. An endless stream of tasks.

In essence, we have become lost in the details of life, just like our parents did. We have become the person we swore we would never be.

And life goes on.

Until it doesn't.

Sometimes events that we have no control over get in the way. We may be diagnosed with a life ending disease like cancer. Or ALS. Or heart disease.

We don't like to think that these things can happen. To us. We try to shut out the possibility. I know I do. But, unfortunately, I am forced to see it every time I work. People who were plodding along just like you and me are suddenly struck down with this disheartening news.

And how do they manage? Some make to do lists, just like they always did. They look at the details of the disease and try to take control of it. It begins to consume them. Just like life had.

But, occasionally, I meet someone who does not do that. They have an interesting story to tell and it is worth hearing. They step away from details and look inward.

And they are much happier.

One patient, young with three kids, was diagnosed with stage 4 ovarian cancer and no treatment options, so she decided to take all of her kids out of school, much to everyone's surprise. She decided to home school them. Her husband took a leave of absence for a year. They rented an RV and traveled the country. They had fun. They were together.

Yes, they let things go. They didn't always eat healthy. They didn't worry about the lawn. As a matter of fact, they let it go, much to the chagrin of their tony neighbors.

They did pay their bills and remained responsible to the important things that keeps life humming along. But they let go of the seemingly endless lists of details that used to bog them down and stifle their enjoyment of life.

"Before I had cancer, I was just an empty shell. Always busy, but busy became me. When people asked how I was doing, my answer? Busy. Sad really."

She went on. "I used to be a dancer when I was young. But my mom said that dancers can't really make any money. So I became a lawyer instead. And then a wife. And then a mom. And I lost myself somehow. I became the details of my life. I wasn't living my life, I was managing the details. Sure, from the outside, we looked great. Nice home. Pretty yard. Well mannered kids. But inside, it was empty. I was empty. I loved my life, don't get me wrong. I just got lost in the details."

"Once I got sick, I realized that this was it. I had little time left. I wanted my kids to know me. The real me, warts and all. Not just mom with the never ending Blackberry in her hand, nagging them to hurry up so we could move on to the next thing. I wanted to just be me, for them to see me. And now I had the perfect excuse. Cancer. But I wish I had realized it earlier."

This patient recently died. In her 40's. It made me cry. A lot. Not just because she was a beautiful person who had to leave this world way too soon, but because she was a terrific role model. A true inspiration. A great mom to three young kids. And a lovely human being.

I learned a lot from her. I may not be able to just pack up for a year and rent an RV, but I can take a day now and again to get in touch with myself. To leave the to-do list at home. To do things that I enjoy that other's may think are crazy. To just be me for a change.

I have also learned that nagging does not help. People hate nagging. If my daughter doesn't have her homework done, all my nagging won't make her a better student. If she fails a test or misses an assignment, she will learn the consequences of her own actions. And that is a much more important lesson that anything I can muster.

I learned from that patient, her name was Eve, that we cannot always shoulder the responsibility for everyone. We may not even be here to always do that. We have to instill in others a sense of themselves. And let them fly a bit on their own.

The last thing she said to me before she died three weeks later was this, "These past two years were great. My kids finally got to know the real me. Not the nagging parent or the lawyer or the household manager. But the real me. I danced for them. We looked at old pictures together. We looked though my yearbooks and I told them stories of how I hated so and so and liked so and so and how certain teachers made me feel bad. I told them how I hated math, hated it. And that my math teacher in High School was an idiot. That I had detention a few times. That I smoked weed. That I thought my parents were dull. I told them how I became a lawyer and thought that I would help others, but instead became part of the machine and ended up worrying more about billable hours. I told them how I met their dad. That I had sex before marriage. That I was a real person, just like them. They were astonished. Maybe even a little uncomfortable. They thought I did not have a clue as to what they were going through. And they began to see me more as person, and less as a role that I played. I am not sure it helped them in any way, but after I am gone, I want them to remember me. The real me. Not just the details I attended to. I know it shocked them a bit. But that is okay. Life is shocking. Get used to it."

God, I miss her.

“Those who danced were thought to be quite insane by those who could not hear the music.”
~~Angela Monet

Sunday, August 22, 2010

Put the gadget down. Please.



Last week, I was rear ended by a person who was clearly not paying attention while driving. He never even braked. Distracted drivers are becoming the new drunk drivers. It is becoming epidemic.

But I am not upset by this. It was a good wake up call. I have allowed myself to be distracted as well. We all have. We may not text and drive, but we dial and drive and talk and drive and look back at our kids and drive and put on lipstick and drive and eat a burger and drive. I have been known to use the rear-view mirror to check my hair while driving on the Mass Pike at rush hour.

By the grace of God, I have not been surprised by a stopped car in front of me. I have not veered off of the road or into the path of another car.

Yet.

But I don't want to talk, or write, about distracted drivers.

I want to talk about people living distracted lives.

There is a lot of life around us. But so many of us miss so much of it. We are obsessed with checking our email, texting, playing games on tiny screens and watching TV. We are always in a rush.

It seems to me that the more technology we have to make our lives easier, the more complicated they have become. The more we are removed from real life. And the less in touch we are with ourselves and our families.

We are so removed from real life that we even watch fake real life on TV.

So odd.

But when someone becomes ill, real life makes a sudden appearance. And shakes things up a bit. I see it happen often.

Suddenly, they are forced to slow down. They see things often for the first time in a long time. They talk to people face to face more often. They read more. They rest more. They write more. They spend more time with family. They spend time working on things that bring them joy. Like needlepoint, reading the newspaper or reading trashy novels. Maybe playing cards or board games with their kids. Things they thought were "time wasters' before.

And they hardly ever turn on gadgets. Not even a computer.

"I never realized how alone I was. I thought I was paying attention to things because I emailed a lot and talked to old friends on Facebook. I thought I was connected to my daughter and son because we texted each other every day, sometimes several times a day. My husband and I watched TV together. But the thing was, we were never really together. I really did not have a clue as to how they were truly feeling, how they even smelled anymore. I used to lie down with my daughter and smell her hair when she was young. That to me was heaven. Now, I never do that. I am sad to say it. I am usually yelling at her to brush it or get it out of her face instead."

This is not some dying patient who had a sudden epiphany. She is a youngish 40-something career oriented mom on our bridge program for pain management. She has two kids, a girl who is a "tween" and a teenage boy.

"I see them with their friends. They text one another while in the same room so that others cannot hear their conversation. I understand that all of the kids do this. I get it. But they miss so much. Relationships are so much more than typed words"

She went on to say, "I never really slowed down until I got sick. I thought I was getting so much done by multi-tasking all of the time. Trying to be productive. Trying not to "waste time". But all I did was waste my time on things that really do not matter. I was always so distracted. I want to smell my daughter's hair again. I want to hug my kids more and spend less time doing things that only I see as important. People are important. Interacting takes time. You have to learn how to interact with people. I am worried that my kids won't know how to interact. We really should have a national no-gadget day. People need to reconnect."

Indeed they do.

Connection is a key part of life that many of us think we have, but we don't. Texting and email is a great way to communicate, but it is a lousy way to really connect. Because to really connect, you have to be physically present. Really present. (And to drive safely you have to be present, too. Ahem.)

So that distracted driver really did me a favor. He made me realize how foolish I have been, allowing myself to become so distracted. Distracted to life.

So tonight I will ask my daughter to put down the gadgets. I will shut off this computer. I will reconnect by disconnecting.

And then I will hug her. And I will smell her hair.

And I will drive only to get somewhere safely. I will be present. Cause if I am not, I may never be again.

Friday, August 13, 2010

Life lessons from a kitten.



Recently, we have acquired another pet. His name is Russell, our new kitten. He is just about as adorable as can be. I never thought that I would warm up to him as I have, being allergic to cats and all. But he has stolen my heart.

He has also done something else. He has shown me that I can learn a lot about life from a kitten.

A kitten you say?

Ridiculous.

I offer the following truths.

1. Purr and sit quietly and people will respond in kind. Scratch and bite and people will put you down and never pet you.

2. Let people know when you are hungry and they will feed you.

3. Sleep when you are tired.

4. Playing with others is fun, but if you are not nice, they will not play with you anymore. Worse, they will growl and bark at you.

5. Go to the bathroom when you need to, but keep it clean. No one likes a dirty bathroom.

6. Groom yourself daily.

7. Enjoy the warm spot the sun makes.

8. Touch people gently with your paws and keep your claws in.

9. Pounce on whatever seems interesting at the moment.

10.The simplest toys are the most fun to play with.

Need I say more?


Living with animals can be a wonderful experience, especially if we choose to learn the valuable lessons animals teach through their natural enthusiasm, grace, resourcefulness, affection and forgiveness.
~Richard H. Pitcairn


Man, unlike the animals, has never learned that the sole purpose of life is to enjoy it.
~Samuel Butler


Everything in life is speaking in spite of its apparent silence.
~Hazrat Inayat Khan


Animals have these advantages over man: they never hear the clock strike, they die without any idea of death, they have no theologians to instruct them, their last moments are not disturbed by unwelcome and unpleasant ceremonies, their funerals cost them nothing, and no one starts lawsuits over their wills.
~Voltaire

Having less is the secret to happiness.




When I was a younger upstart with a big job at a big corporation, (yes, I left nursing to become, among other things, the Director of Managed Care for New England, for a large, well-known pharmaceutical company) I met a colleague who worked in New York state. He was different from all of the other sales managers. He was quite simple. The others were showy and talked about all that they acquired and so on, but this guy didn't. He didn't wear flashy clothes. He didn't live in a big house. He didn't have a fancy watch. And yet he always seemed relaxed and happy.

His philosophy was, "live beneath your means." He told that to anyone who would listen. The other guys made fun of him. As they were stepping on each other's necks to get ahead and acquire more, he simply plodded along. Doing his work quietly and efficiently.

He stood out like a sore thumb.

While others talked about a new boat or a Cape Cod second home or a big vacation to Bali, he talked about his family. While the others talked about moving into their dream home, he talked about how his family of 4 shared one bathroom in their split level home in upstate New York. While others talked about the fancy and expensive camp they were able to get their kids into for the summer, he talked about how they went camping or bike riding.

The other guys I worked with, and most were guys, made fun of him behind his back. They made comments like, "low class" and even "loser." But these guys, who were all about getting more, and more and more, were just about the unhappiest guys I had ever met. And they were always stressed. Always fretful.

Even with their fancy homes and watches, boats and second homes.

Today, I go into the homes of many people. Some live quite well, with huge homes amid manicured lawns in upscale communities. Others, live in basic squalor. I see a lot of poverty.

But there is a middle ground, where people live quietly, but well. And I have to say, they seem the happiest to me.

They have just enough. Just enough house, just enough yard, just enough decorating to make their home seem, well, homey. Nothing over the top, nothing to really brag about. Just a warm, comfortable feeling.

Most of these families can afford the additional care that is many times required when you get sick and want to stay at home. Hospice benefits under any insurer only provide 4 hours a day of home health care aid services. The patient and family have to make up the rest. That is 20 hours at sometimes $15.00 an hour. Out of pocket. Sometimes for months.

Many times the ones that live in the big houses cannot afford it. They are straight out trying to maintain all that they have. They cannot help at home to take care of the loved one; they have to work too much to pay for all they have acquired. They are stressed and angry.

But they do have that lovely well-appointed living room that no one ever goes into.

The poor, well, they usually all just pitch in. They are stressed as well, but for different reasons.

The middle of the road folks, the ones that live well but acquired less, they seem to have money in the bank. They saved for that proverbial "rainy day." They are sometimes not working, many having retired at a young age.

They tell me stories of family time and how mom made Sunday dinner for the whole family every single week. How dad took them fishing. There are usually many pictures of family all over the home. The scene is sad, but relaxed.

Now, many of these folks are very successful people. MIT professors, CEO's of companies, people in the finance world, MD's, lawyers. They just decided not to get on that fast track. Not to try to impress everyone.

They decided just to live simply and for themselves.

And they planned out future needs so that they could afford what they needed should disaster strike.

These people never fail to impress me. They are by far the happiest people I meet, even though they are in crisis.

That is not to say that they didn't spend money. They did. They have beautiful art on their walls and pictures in frames of trips taken abroad. Their kids are all well educated. But they kept their lives simple; acquiring less things and spending more money on making memories and living well enough.

"We never tried to keep up with the Joneses," said a lovely 60 year-old patient that I had the honor of caring for recently.

They lived in a very expensive town outside of Boston.

They had a lovely home, but modest compared to all of the McMansions that dotted the neighborhood.

"Most of these new neighbors that built these big homes over the past few years are strangers to us. They are always gone; either working or running around. I never quite understood it. They build these big homes and are never there to enjoy them."

She went on to tell me, "We were always tempted to buy more. But we realized that buying more stuff does not make life happier. As a matter of fact, it makes life harder. Suddenly, you have more to take care of, more to worry about. You spend all of that energy on things. I wanted to spend my energy on people. It made me different, but I didn't care. Having less is the secret to happiness."

She was so right.

I wish I could say that I follow that rule all of the time. I don't. I like stuff. I want things. But I remind myself that things do not make a life. That at the end of the day, when you look back, you think about people and experiences. Never things. I see it all of the time. And I have changed a lot since those "corporate" days.

I see how maintaining things that we thought would make us happy have really turned out to be more of a burden. Costing us time and money and not true enjoyment.

So I do agree with my patient and that colleague from New York state. They are right. Of course they are right. They have always been right.

And that guy from New York? He retired at age 54. I hear he and his wife took a trip around the world.

The other guys I worked with? Still working. Hard. And still stressed, I am sure.

So, I guess it is really true that less is more. That we just need a few things to make us really happy and the other stuff that we do and acquire to impress others only hurts us in the long run. That success cannot be measured by outward appearances.

That experiences, like riding your bike with your kids, trump bragging rights regarding fancy country clubs and camps any day.



It is preoccupation with possessions, more than anything else, that prevents us from living freely and nobly.
~Thoreau


True happiness flows from the possession of wisdom and virtue and not from the possession of external goods.
~ Aristotle (B.C. 384-322)


Anything you cannot relinquish when it has outlived its usefulness possesses you, and in this materialistic age a great many of us are possessed by our possessions.
~Peace Pilgrim (1908 - 1981)


Thousands upon thousands are yearly brought into a state of real poverty by their great anxiety not to be thought of as poor.
~Robert Mallett


Too many people miss the silver lining because they're expecting gold.
~Maurice Setter